Ongoing contact
The study stores your baby’s data for 16 years. We may contact you from time to time throughout your baby’s childhood – typically no more than a couple times per year. This could be by email or letter.
Reasons we contact you
We will contact you occasionally to:
- Share news and updates about the study
- Ask for feedback on the study
- Ask for more samples or information
- Invite you to join further research or other similar studies
Anything we ask is optional. You can say no to any requests we make.
Contacting you with new findings
During the study, a researcher might find something new about your baby’s health. This is very rare, but possible.
If this happened, we would work with the NHS to contact you. We would only do this if it related to a serious and treatable condition, or if we already knew your child had a condition.
If you withdraw from the study or unsubscribe from all contact, we will not contact you with this information.
Unsubscribing from all contact
You can ask us to stop contacting you about the study at any time. We will keep your baby’s data for research but will no longer contact you.
This means you will not receive further updates or requests from us.
If you unsubscribe before we’ve shared the result of your baby’s test, we will still contact you to share the result. If your baby has a condition suspected result, we will refer them to the NHS for confirmatory testing and clinical care.
Withdrawing from the study
You can change your mind about taking part at any time and you don’t need to tell us why.
If you withdraw before we’ve shared the result of your baby’s test, we will still contact you to share the result. If your baby has a condition suspected result, we will refer them to the NHS for confirmatory testing and clinical care. Your baby’s data and sample will not be stored or used for research.